Non Compaction Cardiomyopathy (NCC/LVNC)

My name is Candi and I have started a website and community of support for patients and families with Non Compaction. Our website is www.non-compaction.org
We are also in the process of starting a not for profit organization.

I am at this time specifically looking for information regarding gene testing and noncompaction. any current studies? Any new developments?

Thanks-
Candi Scheuermann